IRB Number

25-1104-103

Date of Award

Spring 4-2026

Document Type

Capstone

Degree Name

Doctor of Occupational Therapy (OTD)

Department

Occupational Therapy

First Advisor

Kristin Domville, PhD, DrOT, OTR/L

Second Advisor

Claribell Bayona, OTD, OTR/L, CSRS

Medical Subject Headings

Type 1 Diabetes Mellitus Caregivers Occupational Therapy Quality of Life Stress, Psychological

Abstract

Caregivers of children and adolescents with Type 1 Diabetes (T1D) often experience increased stress, occupational imbalance, and challenges related to maintaining their own health and wellness while managing their child’s complex daily care needs. Despite the significant impact caregiving responsibilities may have on daily routines, self-care, and overall quality of life, occupational therapy’s (OT) role in supporting caregivers within endocrinology settings remains underrecognized. The purpose of this capstone project was to explore caregivers’ perceptions of their health and wellness and examine the differences and similarities between caregivers’ and occupational therapy practitioners’ (OTPs) perspectives regarding OT’s role in supporting caregivers of children and adolescents with T1D. A mixed-methods approach was utilized through the distribution of two researcher-developed surveys administered to caregivers and OTPs. Quantitative data were analyzed using Microsoft Excel and SPSS, while qualitative responses were reviewed to identify emerging themes. Findings indicated that caregivers commonly reported high levels of stress, decreased participation in meaningful occupations, and difficulty maintaining occupational balance. Additionally, caregivers expressed a desire for increased education, coping strategies, and support resources. OTPs identified a strong potential role for OT in addressing caregiver stress management, routine development, health management, and occupational participation; however, findings also suggested a gap in caregiver awareness regarding OT services. These results support the need for increased advocacy, interdisciplinary collaboration, and caregiver-focused interventions within pediatric endocrinology settings. Occupational therapy practitioners are uniquely positioned to promote caregiver well-being, occupational balance, and participation through holistic and family-centered care approaches.

Comments

Capstone project submitted to the University of St. Augustine for Health Sciences in partial fulfillment of the requirements for the degree of Doctor of Occupational Therapy.

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