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The purpose of this study is to understand the occupational impact for caregivers who had a child with a life-limiting or life-threatening condition who had received pediatric palliative care. A lack of understanding of occupational therapy’s role in end-of-life care ultimately underutilizes and under-prepares occupational therapists to work in this practice area. Becoming a medical family caregiver, neglecting personal needs and desires becomes a norm having a in-direct effect on physical and psychological health and well-being. Findings from this study suggest that it is reasonable to infer that occupational participation among caregivers is influenced by finding time for self and others, professional and personal sacrifices, multileveled support types, finding meaning and purpose, and engaging in the transformation and healing stages.

Publication Date

Spring 4-10-2024


University of St. Augustine for Health Sciences


Caregivers, Child, End-of-life, Life-limiting, Life-threatening, Occupational therapy, Palliative care, Parents, Pediatrics, Quality of life

Medical Subject Headings

Palliative care, Caregivers, Occupational therapy, Hospice, Pediatrics


Occupational Therapy | Palliative Care | Pediatrics


Poster presented at the Virtual OTD Capstone Symposium, held online at the University of St. Augustine for Health Sciences on April 10-17, 2024.

Occupational Impact of Caregivers in Pediatric Palliative Care