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Children with chronic neurological conditions and their families experience various challenges that impact their quality of life and occupational participation as they reintegrate back into their communities (Dumas & Grajo, 2021; Taib et al., 2021). However, rehabilitation for children with chronic neurological conditions focuses on addressing functional impairments and self-care activities rather than transitioning home (Diener et al., 2021). Therefore, children and their families are in need of resources and interventions to address their occupational impact as they return to their occupations (Diener et al., 2021). This capstone research study explored the lived experiences of children with chronic neurological conditions and their families, and identified their occupational impact as they reintegrated back into their communities. A mixed-methods research design was implemented to gather quantitative and qualitative information on caregivers’ perspectives on their children's and their own experiences, along with their occupational impact in self-care, work, education, social participation, and leisure. Twenty-one participants completed online surveys and the University of Washington Caregiver Stress Scale (Amtmann et al., 2020). Nine participants completed an optional virtual interview and the Canadian Occupational Performance Measure (Law et al., 2014). Following data analysis, the results of this study supported that children with chronic neurological conditions and their families experience negative impacts while participating in their occupations. This research study contributes to the profession of occupational therapy by providing an increased understanding of the experiences of children with chronic neurological conditions and their families as they reintegrate back into their communities.
University of St. Augustine for Health Sciences
caregivers, caregiver stress, community reintegration, neurological conditions, occupational impact, occupational therapy, pediatrics
Medical Subject Headings
Caregivers, Pediatrrics, Neurology, Self Care, Social Participation, Leisure Activities, Occupational Therapy, Surveys and Questionnaires
Neuroscience and Neurobiology | Occupational Therapy | Social Work
Pasion, C., & Orozco Arteaga, J. (2022, December 8). The Experiences of Children with Neurological Conditions and Families. Poster presented at the Virtual OTD Capstone Symposium, University of St Augustine for Health Sciences. Retrieved from https://soar.usa.edu/otdcapstonesfall2022/3