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Description

Background. Historically minoritized populations are underrepresented within hospice care. The lack of diversity among hospice care recipients impacts the development of culturally responsive programming within hospice care for BIPOC family caregivers.

Objective. To learn of the values and perspectives of BIPOC family caregivers in hospice care regarding occupational balance and occupational harmony.

Methods. A mixed-methods study that included an online survey and an optional interview. Measurements utilized were the Occupational Balance Questionnaire (OBQ-11) and an anonymous survey. Three participants completed the online survey.

Results. Preliminary codes were determined by the student researcher from the online survey responses. Four codes were identified: domains of caregiving, spirituality, spectrum of strategies for self-care, and sense of purpose.

Conclusions. Preliminary analysis suggests that BIPOC caregivers relate to cultural values that align with familism and caregiver burden. Suggestions for future research in occupational therapy should aim to assesses the efficacy of a program to better support resiliency for BIPOC caregivers in hospice.

Publication Date

Spring 4-10-2024

Publisher

University of St. Augustine for Health Sciences

Keywords

BIPOC, Family caregivers, Hospice, Occupational balance, Occupational harmony

Medical Subject Headings

BIPOC, Family caregivers, Hospice, Occupational balance, Occupational harmony

Disciplines

Occupational Therapy | Palliative Care

Comments

Poster presented at the Virtual OTD Capstone Symposium, held online at the University of St. Augustine for Health Sciences on April 10-17, 2024.

Values of Occupational Balance and Harmony Among BIPOC Caregivers

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