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Description
The purpose of this study is to understand the occupational impact for caregivers who had a child with a life-limiting or life-threatening condition who had received pediatric palliative care. A lack of understanding of occupational therapy’s role in end-of-life care ultimately underutilizes and under-prepares occupational therapists to work in this practice area. Becoming a medical family caregiver, neglecting personal needs and desires becomes a norm having a in-direct effect on physical and psychological health and well-being. Findings from this study suggest that it is reasonable to infer that occupational participation among caregivers is influenced by finding time for self and others, professional and personal sacrifices, multileveled support types, finding meaning and purpose, and engaging in the transformation and healing stages.
Publication Date
Spring 4-10-2024
Publisher
University of St. Augustine for Health Sciences
Keywords
Caregivers, Child, End-of-life, Life-limiting, Life-threatening, Occupational therapy, Palliative care, Parents, Pediatrics, Quality of life
Medical Subject Headings
Palliative care, Caregivers, Occupational therapy, Hospice, Pediatrics
Disciplines
Occupational Therapy | Palliative Care | Pediatrics
Recommended Citation
Ramos, L., Park, K., & Arteaga, J. O. (2024, April 10). Occupational Impact of Caregivers in Pediatric Palliative Care. Poster presented at the Virtual OTD Capstone Symposium, University of St Augustine for Health Sciences. Retrieved from https://soar.usa.edu/otdcapstonesspring2024/20
Comments
Poster presented at the Virtual OTD Capstone Symposium, held online at the University of St. Augustine for Health Sciences on April 10-17, 2024.